About Me

I am in my late 30’s and living life now with as much freedom and excitement as possible.  I am a Husband, Father, Firefighter, Paramedic and a Chiairan Zipperhead.  I am proud to be all of these things.  Don’t get me wrong I would skip the whole Chiarian part if I had a choice but I do not.  Why am I proud of these things?  So far i have been one of the fortunate ones that made it through this journey with only minimal problems, and the other things are self explanatory.  I am very blessed to say the least.  Some Chiarians don’t have the success that I have had.

Since decompression surgery on March 26th, 2009 I have returned to work and back to my Volunteer Fire Department.  As of today, Feb. 2nd, 2011, I am 100% recovered and gettin back to being my old self.  Don’t get me wrong I still have a few minor symptoms but I have developed life crutches to get through them and they are nowhere near what I was before surgery.  This Blog is dedicated to all those with Chiari in hopes that I may spread the word about this affliction that we face.  There are many people out there raising awareness and funds for research and I commend them for their efforts.  I want to stop and say “Thank You to those folks and keep up the great work”.

So check out my Blog and see the rest of my journey.  Take care and be safe.

5 thoughts on “About Me

  1. Amy Rogers

    I was diagnosed in December 2004 with Chiari Malformation, for many years I have been told that it is all in my head and that I am fine (other than the migraines). Dealing with the symptoms on a daily basis will deplete your energy!! My mother was diagnosed a few years ago with Chiari as well, but she doesn’t really have any active symptoms. I finally found Dr. Oldfield and sent all of my information (including a 2 page letter detailing my daily struggles and how bad the symptoms have become. I have yet to hear anything from his office and can’t hang on much more.

    No one can really understand the pain and suffering that one must endure trapped inside…on the outside, you look fine. What will it take to have a doctor who specializes in this condition to see you???? I am at a breaking point and don’t know what to do

    Reply
    1. Cristen Dorsey

      I agree I am too!I have been battling this for almost 13 years now.I hope o be able to discuss this further with you and maybe we can find and team up with others who are in the same boat as we are and fight for our rights.

      Reply

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