I am now a little over 6 months post decompression. I am doing very well to say the least. I am so thankful to have my life back. I recently realized how symptomatic I was before surgery. Too think that I actually wanted to put it off at one point. Jessi (my beautiful wife) and I were talking about some of the things that I was doing before surgery the other day. I did not realize that I was dropping off mid-sentence and not finishing my thoughts. I was not only losing words at that point but whole thoughts. I do not remember reading anything about that kind of cognitive problems associated with Chiari.
I have recently found some new studies on neuro function that are pretty amazing. Not only does the cerebellum control motor function but it also discerns auditory and focal processes. That means that cognitive function can be drastically affected by Chiari. I recently spoke to my old partner at work and thanked him graciously for carrying me. If if weren’t for him I never would have been able to work as long as I did before surgery. He is a great guy.
So now that I am better what does this mean for me? Well I have been thinking about a lot of things lately. Such as how long I can keep up being a paramedic? Just because I am back to work and functioning 100 % now doesn’t mean that I can keep putting my body through 24 hour shifts, lifting on people and climbing upside down in cars. Yes just recently i’ve been upside down in a car with a 70-year-old lady. She is doing well though, but I digress.
I am considering getting either my Physician’s Assistant or my Nurse Practitioner and looking for a neuro that needs an experienced medical professional and Chiarian. It will mean going back to school but my wife thinks I can do it. She has been my rock, my love, my nurse and so much more through all of this. I am so thankful for her. We celebrated our 10 year anniversary this year. It wasn’t a huge celebration but it was very special for us.
So take heart. There is life with Chiari. I know that I have been fortunate with my journey and it is not always this way. But I wish all that suffer from this the best days possible and that soon there will be more that can be done for us and that we can all rest easier because of it.
And so I sign off today with this. Take care and be safe. Remember BIG FIRES START SMALL!