Chiari Diary No. 6 Sunday, March 08, 2009
I have seen Dr. Oldfield and I have a completely new outlook on my situation. Everything is scheduled. Despite what Cleveland Clinic said I am going to have the surgery. I believe that Dr. Oldfield’s opinion is more accurate. I still have the sleep study scheduled and I am going to do it because UVA wants to know for surgical reasons. I will be leaving here on March 24th so I can have all the presurgery stuff done on the 25th. I will then have surgery on the 26th. They expect me to be out of the hospital in 3-5 days and spend a couple of days in a motel room near the hospital. After that we will be headed home. My family and friends have been very supportive and understanding. Jessi will keep everyone advised of my progress via email, text, phone and this blog. So check in on the 27th or 28th and see how it went.
Also I would like for everyone to check out Zipperhead Productions. This is a fellow Chiarian that is setting up concert productions to rasie money for rare medical disease research including Chiari. He is a great guy. He is working hard to help us all so let’s support him. Follow the following link to see what he is up to.
Till then Take care and be safe
Chiari Entry No. 7 Wednesday, March 25, 2009
Hello everyone. Well it is official, I will be a Zipperhead by 4:00 pm tommorrow. Dr. Oldfield and his staff have been excellent. They have been informative, supportive, and compassionate all roled into one. I won’t lie, I am not looking forward to this. However I am looking forward to feeling better in the future. They will be starting the procedure around 10:30 am and should be out and in NICU around 5:00 pm. So check back tommorrow night for an update. Till then take care, be safe and may your pain be at least manageable.
Chiari Entry No. 8 Saturday, March 28, 2009