Hello world!

My name is Kyle and this is my blog about Chiari and Me.  I was diagnosed October of 2008.  What does this mean you may ask?  Well in a nutshell my Neurologist came into the room and told me that my brain was too big for my head.  This caught me a little off guard and I kind of chuckled (I had been told that before).  Then he sat down and explained it to me.

My Cerebellum had herniated down through the hole where the brain stem goes through the skull.  To my surprise he showed me the MRI and the measurements.    This hole (excuse the pun) visit was proceeded by several other attempts by me and my wife to find out why I was having horrendous headaches in my skull base area that had lasted for almost 2 months.  We had an answer now or so we thought.  Just because I had a basic diagnosis didn’t mean much to the Doctors where we live. 

It was kind of like “oh you have headaches, here take this pill and it will help”.  Well the pills didn’t help.  They dulled it down for a time but there was never any real relief.  Then there were the side effects of the medications to add to it.  Things like never being able to sleep.  I like sleep personally, it is my recharge mechanism.  So then there was a new pill.  That one just made me moody.  I don’t like moody and my family really didn’t like a moody me.

This is the beginning of my journey.  I have not come all the way through yet but I am definitely better since surgery.  I’ll post more on this journey later.  Bye for now.

Advertisements

5 thoughts on “Hello world!

  1. Pam

    Kyle,
    I cannot believe how some doctors are. I love the doctor Jer has @ UVA’s transplant department. I think a good pt/dr relationship has alot to do with recovery. I’m so glad u are doing better. I can’t wait to read more.
    I love ya sweetie.
    Pam

    Reply
  2. Lace

    I jsut found your chiari blog ans wanted to introduce myself as a fellow chiarian. Blogging is such a great way to share your chiari journey, I started my chiari journey blog back in 2006 ~ since then I have been detethered and decompressed by the specialists in NY. I wanted to let you know that you are not alone in your journey, there are others like me who have similar journeys and we are all trying to figure out how to live in peace with our brain tails. Please let me know if you have any chiari questions or just want to vent. Hang in there ~ Lace

    http://livelovelaugh-lace1013.blogspot.com/

    Reply
    1. Lace

      Kyle ~ u can absolutely link me into your blog and if you don’t mind may I link your blog into mine? Take it easy with your recovery. Mine was back in Dec 08 and i am feeling better with each passing day ~ so much better than before decompression ~ but learning to live with the aches and pains of low barometric pressure fronts I can handle. Keep blogging you story ~ there aren’t many chiarians out there who are males and willing to blog about their experience. Hugs ~ Lace

      Reply
  3. Pam

    OMG, Kyle!! What an experience. And how truly lucky you are to have had Jessi by your side. Y’all are an awesome couple. I know every couple has thier “times”, and am sure y’all have your fair share, but for the person you love to love you and know what you needed that day before surgery, and to do it without a thought….that’s a blessing. You are here for a reason. Thats why the surgery worked. I await more blogging Take Care. I love ya

    Reply

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s