My name is Kyle and this is my blog about Chiari and Me. I was diagnosed October of 2008. What does this mean you may ask? Well in a nutshell my Neurologist came into the room and told me that my brain was too big for my head. This caught me a little off guard and I kind of chuckled (I had been told that before). Then he sat down and explained it to me.
My Cerebellum had herniated down through the hole where the brain stem goes through the skull. To my surprise he showed me the MRI and the measurements. This hole (excuse the pun) visit was proceeded by several other attempts by me and my wife to find out why I was having horrendous headaches in my skull base area that had lasted for almost 2 months. We had an answer now or so we thought. Just because I had a basic diagnosis didn’t mean much to the Doctors where we live.
It was kind of like “oh you have headaches, here take this pill and it will help”. Well the pills didn’t help. They dulled it down for a time but there was never any real relief. Then there were the side effects of the medications to add to it. Things like never being able to sleep. I like sleep personally, it is my recharge mechanism. So then there was a new pill. That one just made me moody. I don’t like moody and my family really didn’t like a moody me.
This is the beginning of my journey. I have not come all the way through yet but I am definitely better since surgery. I’ll post more on this journey later. Bye for now.